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Financial Concerns at the End of Life

By

Elizabeth L. Cobbs

, MD, George Washington University;


Karen Blackstone

, MD, George Washington University;


Joanne Lynn

, MD, MA, MS, Altarum Institute

Last full review/revision Oct 2021| Content last modified Nov 2021
CLICK HERE FOR THE PROFESSONAL VERSION

Progressive disability often accompanies fatal illnesses. People may gradually become unable to tend to a house or an apartment, prepare food, handle financial matters, walk, or care for themselves. Most people who are dying need help, at least during their last weeks and often for much longer before that. Such disability should be anticipated, perhaps by choosing housing that is accessible to wheelchairs and close to family caregivers. Services such as occupational or physical therapy and home health nursing may help a person remain at home, even when the disability progresses.

Disability and illness can stress families financially. Many families deplete their savings while caring for a dying family member. Medicare Medicare Current details regarding funding and availability of medical care in the United States remain unsettled. The reader is referred to the Centers for Medicare & Medicaid Services and The Henry... read more does not pay for many services dying people need, such as long-term care in nursing homes or home health aides at home. Services provided by a hospice program Hospice Care Hospice is a concept and a program of care that is specifically designed to minimize suffering for dying people and their family members. In the United States, hospice is the only widely available... read more are the exception in that they are usually quite comprehensive. However, many people may have significant needs during periods when they may not qualify for formal hospice care.

The family should investigate the cost of care for a family member’s serious illness. Information about coverage and regulations can take substantial and diligent work to obtain. Consulting the doctor and care team, visiting the Eldercare Locator online or by calling 1-800-677-1116, or consulting a social worker from a hospital or health plan are good places to start.

Family members often provide most of the care at the end of life for free, but they should explore how professional caregivers can help them so that the burdens are tolerable. There may be costs of giving up employment as well as expenses of drugs, home care, and travel. The family should talk openly about costs with the doctor, insisting on reasonable attention to costs and planning ahead to limit or prepare for them.

Planning for the dying person’s estate is advisable. Although discussing property and financial issues is hard to do when death is impending, it is usually a good idea. Doing so often reveals things that could be signed or arranged by the dying person, easing the burden on the family. Some attorneys specialize in elder care and can help people deal with financial and legal concerns.

NOTE: This is the Consumer Version. DOCTORS: CLICK HERE FOR THE PROFESSONAL VERSION
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Do-Not-Resuscitate (DNR) Orders
A do-not-resuscitate (DNR) order is a document placed in a person’s medical record by a doctor. It informs the medical staff at a hospital that cardiopulmonary resuscitation (CPR) should not be attempted if a person’s heart and/or breathing stops. CPR is often followed by more drastic measures such as use of electric shocks to the heart or insertion of a breathing tube; a DNR order stops these measures as well. When administered near the end of life, what is the success rate of CPR?
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